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paulw · 11-06-2009, 07:01 PM

My wife was diagnosed in 9/07 with Bulbar onset. She has progressed to the point where she has very little motor abilities left. Can't speak either. We communicate by her moving her eyes away when the answer is yes. Lately she does not seem to understand even the simplest questions. Are you hot, are you cold. Is that common with late term ALS patients?

I get so frustrated that I just want to scream. We should have the dynavox eyegaze next week. If that does't help with our communications, I don't know how we will get through this.

Any advice, Please!

11-06-2009, 07:01 PM	#1 (permalink)
paulw New Member (Say Hi) Registered Member Join Date: 2009 City: sackets harbor State: ny Country: USA Diagnosed: 00/0000 Posts: 35	ALS and cognitive ability My wife was diagnosed in 9/07 with Bulbar onset. She has progressed to the point where she has very little motor abilities left. Can't speak either. We communicate by her moving her eyes away when the answer is yes. Lately she does not seem to understand even the simplest questions. Are you hot, are you cold. Is that common with late term ALS patients? I get so frustrated that I just want to scream. We should have the dynavox eyegaze next week. If that does't help with our communications, I don't know how we will get through this. Any advice, Please!