my husband was diagnosed 13 months ago with bulbar
als they say it is different for everyone ,he is also dependent on me for all his care, he doesn't want a feeding tube, I feed him we take it slow. his speech is hard to understand it is so frustrating sometimes, he has a machine that he can type on but his hands no longer allow him to do that. we have a 8 year old son, lately I can tell it is hard for him to see this happening to his dad, to see him go from being strong to being in a wheelchair unable to walk or feed himself in a years time, I hate this disease. I understand what you mean about not having time to yourself, we all need that to reenergize, but most of the time theres just not time for it.