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Old 11-06-2009, 08:35 AM   #9 (permalink)
kelly
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Join Date: 2006
City: saratoga springs
State: ny
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Default Re: "bulbar-onset rarely misdiagnosed"

Dave...my youngest son was 3 when my hubby was diagnosed..can totally relate to the pain that you are feeling. I have learned that I must accept help..and can't do it all alone. If someone offers to make a meal...take it...if someone offers to watch the kiddos..accept the offer. I hate to say it...but get use to no downtime....not sure what that even is these days. I do try to take one hour to walk each mornig before I start our daily routine. I got some really solid advice last night..that was really helpful. This is the phase of your life that you will be dedicated to your wife and children. YOu will have downtime again sometime..but now is not the time. I hope that is helpful..it was for me. I hope that it made sense???!!???
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