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Old 11-05-2009, 10:21 PM   #6 (permalink)
Dave C
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Join Date: 2009
City: Lindenhurst
State: Illinois
Country: US
Diagnosed: 03/2009
Posts: 37
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Default Re: "bulbar-onset rarely misdiagnosed"

Thanks Micheline, we have been moderately active with the Les Turner Foundation (e.g. the walk) which is local to Chicago I think, so far we have Jen's mom (only relative local) to help during the day with the kids and Jen, since my company is only willing to pay me for X number of days off. I have been told of the IL Medical Leave Act (or something close to it) but that only guaratees your job and doesnt pay the bills. SS Disability has been applied for and approved for Jen which is helping financially.
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