ALS/MND Support Group Forums - View Single Post - Bulbar Onset ALS? You probably know more than docs.

BethU · 11-05-2009, 01:20 PM

Karen, yes ... except for the twitching. My bulbar symptoms started with slurred speech, and also gasping for breath when I tried to speak.

It's good you are seeing a specialist. One thing to hang on to is that there numerous other conditions that have these same symptoms, and ALS is very rare. It will take a lot of testing to narrow it down to ALS, so don't throw in the towel.

Hang in there. I'll keep you in my prayers.

11-05-2009, 01:20 PM	#2 (permalink)
BethU Extremely Helpful Member Registered Member Join Date: 2008 City: Los Angeles State: California Country: USA Diagnosed: 05/2008 Posts: 2,859	Re: Bulbar Onset ALS? You probably know more than docs. Karen, yes ... except for the twitching. My bulbar symptoms started with slurred speech, and also gasping for breath when I tried to speak. It's good you are seeing a specialist. One thing to hang on to is that there numerous other conditions that have these same symptoms, and ALS is very rare. It will take a lot of testing to narrow it down to ALS, so don't throw in the towel. Hang in there. I'll keep you in my prayers.