I know someone with
ALS and hospice has recently been called in. I don't know how to take that really. I know hospice is usually called in in the final stages of a person's life but since
ALS progresses differently in each person as I'm told-- I don't know whether to be afraid that "this is it" or what's really going on. I don't feel like I ever really get an answer about where this person stands prognosis wise (for lack of a better way to put it). I'd just like to know. Can anyone give me any info? This is someone I'm close to and no one seems to want to talk about it because its upsetting but I feel like I want to have some idea so I can use the time wisely. I've been trying to use the time wisely all along but now I feel llike time is reallly ticking....
Anything helpful would be really appreciated. Sorry if this is cryptic, I don't really know what to say...