Karen, I went through a similar situation about 18 years ago w/ my father the difference being that he refused to go on a feeding tube. The legalities may be different taking somone off life support who is already on. My dad was dx w/ Motor Neoron Disease of an unknown origin what ever that means. Anyway he could not do anything he was bed ridden & couldn't swallow he chose not to have a feeding tube we did have hospice coming to the home, all I can say is we honored his wishes and stayed with him every step of the way we let him know that if at any time he changed his mind we would help him. I can't even explain what that was like I will never forget those few day's that seemed like an eternity hospice walked us thru every step. I hope this dosn't sound morbid but I think it is important to honor our loved ones wishes & be there for support. Is there a Living Will. I almost hesitate to post this it is such a touchy subject but I've been there & I may be there again somday I don't know all I can say is God help us all and give us Strength.