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daughter01 · 11-01-2009, 06:04 PM

This is the latest news from my Dad. Is it normal to be so tired with ALS?

BUT, please understand that she WILL be exhausted by mid afternoon and will not be able to make the trip up for dinner.
True, it's just a guess on my part, but a very calculated guess based on what I've observed over just the past 3-4 days!
We're hopeing for something radical from the Thyroid doctor on Thursday. She IS getting worse. And that's from your mom
as well as from me. She no longer walks around the house from the chair to the bathroom and back. etc. It's now (as of yesterday and today)
100% wheelchair - from point A to point B - inside the house.

And regarding your comment "I won't tire her out", please trust me, YOU won't but your visit - just your presence, will. She get emotionally
charged by someones visit - and it leaves her very tired. She really tries extreamly hard to be up for the visits from her daughters.
This morning she was up by 6:30am (due the the time change), had her first-thing-in-the-morning meds and took a nap. She woke up from breakfast (had eggs) and went back down for a nap. She got up at 9:45am thinking that it was late afternoon. I corrected her thinking, took her
to the bathroom, and went back down for a nap. She's still in her PJ's - but resting well.

I will try to find out what her early symptoms were.

11-01-2009, 06:04 PM	#9 (permalink)
daughter01 New Member (Say Hi) Registered Member Join Date: 2009 City: Harrisburg State: PA Country: US Diagnosed: 00/0000 Posts: 18	Re: Thyroid masking as ALS This is the latest news from my Dad. Is it normal to be so tired with ALS? BUT, please understand that she WILL be exhausted by mid afternoon and will not be able to make the trip up for dinner. True, it's just a guess on my part, but a very calculated guess based on what I've observed over just the past 3-4 days! We're hopeing for something radical from the Thyroid doctor on Thursday. She IS getting worse. And that's from your mom as well as from me. She no longer walks around the house from the chair to the bathroom and back. etc. It's now (as of yesterday and today) 100% wheelchair - from point A to point B - inside the house. And regarding your comment "I won't tire her out", please trust me, YOU won't but your visit - just your presence, will. She get emotionally charged by someones visit - and it leaves her very tired. She really tries extreamly hard to be up for the visits from her daughters. This morning she was up by 6:30am (due the the time change), had her first-thing-in-the-morning meds and took a nap. She woke up from breakfast (had eggs) and went back down for a nap. She got up at 9:45am thinking that it was late afternoon. I corrected her thinking, took her to the bathroom, and went back down for a nap. She's still in her PJ's - but resting well. I will try to find out what her early symptoms were.