ALS/MND Support Group Forums - View Single Post - how many already dx knew before doc told you?

halfin · 10-31-2009, 01:15 PM

In my case, ALS had been mentioned as a possibility, but I really didn't think I had it. My symptoms were so mild it seemed ridiculous to even consider it. Kind of like what Beth described, I was going in for a test that would distinguish whether MG or ALS was more likely, but before even doing the test they did a regular EMG and on that basis immediately diagnosed ALS. This was a complete shock to me, I had convinced myself that I didn't actually have anything wrong and it was all in my head. I actually felt guilty going in to the appointment, that I was wasting the doctor's time over such a small matter. I could hardly believe it when he made the diagnosis. In fact I am still doubtful some days.

10-31-2009, 01:15 PM	#12 (permalink)
halfin Member Registered Member Join Date: 2009 City: Santa Barbara State: CA Country: US Diagnosed: 08/2009 Posts: 327	Re: how many already dx knew before doc told you? In my case, ALS had been mentioned as a possibility, but I really didn't think I had it. My symptoms were so mild it seemed ridiculous to even consider it. Kind of like what Beth described, I was going in for a test that would distinguish whether MG or ALS was more likely, but before even doing the test they did a regular EMG and on that basis immediately diagnosed ALS. This was a complete shock to me, I had convinced myself that I didn't actually have anything wrong and it was all in my head. I actually felt guilty going in to the appointment, that I was wasting the doctor's time over such a small matter. I could hardly believe it when he made the diagnosis. In fact I am still doubtful some days.