I attended a motor neuron disease information session with my mother today (she has bulbar symptoms) and a dietitician was showing us how a peg worked. She was also recommending that the "food" that got poured into the peg was those artificial food supplements, not "real" food in a pureed form.
I was horrified, and so was my mother, who associates all that artificial nutritionally dense packaged mush with my father's cancer. The house used to be full of these awful artificial products, and Mum was really happy to get rid of it after Dad died. Now she is being told that she will have to use these things herself if she wants to survive.
I asked the dietitician if we could prepare our own foods to put into the peg (pureed spinach, pureed lentils etc) and she said that would increase the risk of infection. SHe said that 30 years ago they had to prepare food for this purpose, but that is how things were done in the past when there was not such a range of packaged options. I got the impression that the dietiticians are very dependent on this packaged stuff.
Mum doesn't want to use a peg (yet) but the time will come for her to make that decision if she wants to survive. In the meantime we may learn more about what we can put into it (packaged nutrition versus wholesome home-made purees).
In answer to your question - I do understand your apprehension. It does seem that the choice is very clear and is based around whether you want to keep going (with an artificial prop) or not. And that is a very personal decision.
Good luck to you in making that very difficult decision.
sesl