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Old 10-20-2009, 02:53 PM   #5 (permalink)
mommaof4
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Join Date: 2009
City: The Woods
State: Washington
Country: USA
Diagnosed: 00/0000
Posts: 5
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Default Re: Just found out best friend has PBP

Thanks so much for the quick responses. I have actually spoken with her this morning (she told us all the news yesterday via text since she was not ready to talk to anyone right after diagnosis)!! I have been able to pass along some info and ideas to her. I am glad that I jumped on the research train so quickly and that I was able to offer her something other than the "I'm so sorry" response. She lives 12 hours away from her family and closest friends, so we are limited in our support (at this point). She does live 20 minutes from her in-laws so they can help out some, but I am hopeful that they will decide to come home.
She has a positive outlook as of today. She knows that being angry and dwelling will not "fix" anything. She realizes that as things progress she will experience these feelings but is preparing for that. She also asked about sign language as her speech is already deteriorated quite a bit. I thought it was a great idea for her, especially because at this point she has no limb involvement. I am so proud of her already!!
Thanks for the info on the clinics/rehab centers. I did suggest them to her. Does anyone know about getting help financially for medications and other devices which will be needed in the future?? Can these centers help her with that type of info? Since we are just starting this journey any and all thoughts, advice, and bits of wisdom are so appreciated.
Thanks again!
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