Thread: Bon Voyage Al!
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Old 12-11-2004, 11:46 PM #11 (permalink)
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Good evening.
Carol, I read your message at work, and between hearing that Henry is getting weaker, picturing you trying to fix it all, while making sure Christmas is in order, hell, I haven't even started, all during the moments I heard the "Christmas Canon" by Trans-Siberian Orchestra on the radio, I was fighting the tears. Where does this energy come from? How do you manage to juggle this all...Henry has never had a coke before? Rum does mix well with it....makes me wonder how the "Cuban" tourists are making out. You are right, love and laughter is the best medicine, and I bet that is why Henry is still with you. It is the love that gives you strength to get up every day, many mornings I suspect without much rest. I am hanging in without anything new to report. I sent an email out a couple of days ago, not that I expected any reply, trying to stir up his insides a bit, telling him my position,and saying that I am here, but if he doesn't come clean soon, I will remain silent. Hard to do, but I hope he reads it, sure he will at some point, I know he will think about what I have written, and if he does open his email, seeing there are no more messages from me, will at some point give him a shake. Not my choice of action, but I am at the point, I see no other choice. Kinda sucks during the holidays. I worry about him, and how his health is. He is a private person, and I think for so long his opinions and feelings have been ignored, so he shuts down during periods of stress and doesn't talk. I have tried to free him of that, and have had successful moments where I have given my head a shake as he has spoken. So the issues I am having with him is a pattern of who he is, if we were living together, I could get him to talk, because when we are face to face, and I push, he lets it out. He is in a corner then, and has little alternative. I guess I didn't push harder when the opportunity was there. The ALS has exaggerated the situation, and I suppose what ever meds he is taking has side effects. I don't know what he is on now, but I do know that they have changed them several times since August, one was giving him high blood pressure, a condition he has never had, one they had him on last year with the MS diagnosis, turned him into a crazy monster one day, and a gentle lamb the next. I am holding firm, he has to come to me...sorry for the outburst here, I guess the forum is getting what I would say to him. Hold on to Henry, hold him and love him..you are amazing.
Debbie, you sound like you have a good man in Dave. And your positive upbeat manner will help you and he reach these challenges, and prepare for the research. Five children between you...I have four, am the same age you are, but with Dave by your side, anything can happen.
You guys are great and we need to pray for each other.
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