Thread: Bon Voyage Al!
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Old 12-11-2004, 10:46 AM #8 (permalink)
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Carol Deboer Carol Deboer is offline
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Join Date: 2003
Posts: 345
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Hi Theresa,

We have have a hard week. Henrys feeding tube is all blocked up. So, when we turn the pump on at night, it will only drip for about 20 minutes and then start beeping. It is very difficult because he needs this nutrient and his tube inside his body is all plugged up. So, I am off to get more Coke today to try to clear it up. Hopefully it works. He is getting weaker by the day, however, he still maintains a good disposition. I am so lucky. He could be really mean and angry and not want to co-operate with any of us, but we love him and try to keep him as comfortable as possible. He is on a lot of pain medication now, however he still has a clear mindset. That is so important to him and also to us. So, we go on minute to minute. We laugh, smile, kiss, hug and share memories and love that no one could even begin to understand. Damn als ! Anyway, that is our life and we really appreciate all the help and support we get from all. Have a good day everyone, must run to the mall...... Xmas shopping ugh ! How are you Theresa? Hope you are hanging in there. Will talk soon.


Stay Strong..... Love Carol
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