marywest45
Member
- Joined
- Aug 3, 2009
- Messages
- 27
- Diagnosis
- 07/2009
- Country
- US
- State
- MD
- City
- baltimore
As you may recall from my previous posts I was recently given a probable ALS diagnosis by a neuromuscular specialist at Sinai (MD) and later confirmed by doctor at Hopkins.
My visit to Hopkins was rather short; I was given my diagnosis (largely based on my EMG) and was told to come back for ALS clinic visit in October.
I know that I'm probably going thru denial, but was wondering if you ever heard of patients being misdiagnosed at Hopkins.
I have so many questions that I didn't have a chance to ask during my visit to Hopkins. I called Sinai neurologist, but they directed me back to Hopkins.
I was told at Hopkins that I have an axial onset ALS; I can't find much information on that. it's plenty of info on limb and bulbar, but no info on axial.
I would appreciate any info on axial or any direction where to look for such info.
Deeply thankful, Mary
My visit to Hopkins was rather short; I was given my diagnosis (largely based on my EMG) and was told to come back for ALS clinic visit in October.
I know that I'm probably going thru denial, but was wondering if you ever heard of patients being misdiagnosed at Hopkins.
I have so many questions that I didn't have a chance to ask during my visit to Hopkins. I called Sinai neurologist, but they directed me back to Hopkins.
I was told at Hopkins that I have an axial onset ALS; I can't find much information on that. it's plenty of info on limb and bulbar, but no info on axial.
I would appreciate any info on axial or any direction where to look for such info.
Deeply thankful, Mary