just the wife
New member
- Joined
- Jun 3, 2009
- Messages
- 2
- Diagnosis
- 11/2008
- Country
- US
- State
- IL
- City
- Romeoville
This is my first entry and first time putting down the words that my husband has a MND. Whew! So my husband starting having weakness and atrophy in his hand 18mos ago. We finally saw a neurologist in Nov. and she said she thinks he has ALS. We got a second opinion and she said it is too early to make that diagnosis. Anyway, my husband is in BIG denial (I don't necessarily think that's a bad thing). We were told to return for another EMG last month but I feel like if he has ALS we certainly won't miss it and we don't need another painful test that will say maybe.... I am a hospice nurse, this is good and bad in that I look at him daily and think I see him wasting away. Subtle changes. He still can work, he's a carpenter supt. and he really is not limited much as to what he can do but I think he's getting scared and doesn't want to admit it to me or himself. Can anyone think of a good reason to keep going to the doctors? I know there is no medical treatment per se and he isn't interested in taking Rilutek. I get very focused and admit I may be missing the big picture or at least alot of the parts. Sorry I'm so long-winded.