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Old 11-24-2004, 10:01 PM #13 (permalink)
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Hi Melissa, good for you. Don't let the doctor stone wall you, and if you don't get satisfaction tell him you want a referal to this Dr. Strong. What scares me about this is if it is not ALS, which of course praying it isn't, it could be something treatable, but if it goes undetected, could be damaging. Maybe they need to start from the begining with a fresh set of eyes and get the necessary tests done. There are many days and moments I want to say to hell with this, I have the freedom to walk away, but I can't unless I am given no other alternative. He is a fabulous person in every aspect except the Superman mode where he can take on the world, and rarely asks for help when he is struggling. I am worried, upset, and extremely angry at the moment, and all those emotions are getting in the way of day to day operations. When the anger peaks, at least I do some housework and run around the house getting the chores done, helps work it off.

This is a rollercoaster for everyone, no matter who and how it touches us.

I think Al and Lee should invite us all on this holiday..the more the merrier!

Remember, stay aggressive with the doctors. Good luck.
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