Al
Moderator emeritus
- Joined
- May 25, 2004
- Messages
- 8,083
- Reason
- PALS
- Diagnosis
- 10/2003
- Country
- CA
- State
- On
- City
- NW of Toronto
Hi gang. Went to the Doc. yesterday and he took me off the Levodopa for cramping because it might be giving me major indigestion. I know a lot of people are taking the Baclofen but it is not without side effects. My liver tests came back clear so the Riluzole so far isn't hurting that organ and obviously the wine isn't hurting it so carry on as normal is what he says.
Some might find this a strange question but does anyone know if you can still be an organ donor with ALS? I have always filled out the paper on my liscence and am now wondering. Could I freeze my pancreas for later use by my diabetic son when they perfect that type of transplant. Just one of the random thoughts that go through your mind when you are in a strange position. I find this to be a strange position. I don't like it and don't want to be here but will accept my fate. They'll have to take me kicking and screaming (that is if I can still kick and scream) out of here but if not I'll give the big guy on the other side crap. He'll wish he sent me the other way. On a lighter note is anybody going to be at the CdnPals site for a chat at 9pm EST tonight. (THURS.)
Enough ramblings for tonight. Hope everyone is well.
Some might find this a strange question but does anyone know if you can still be an organ donor with ALS? I have always filled out the paper on my liscence and am now wondering. Could I freeze my pancreas for later use by my diabetic son when they perfect that type of transplant. Just one of the random thoughts that go through your mind when you are in a strange position. I find this to be a strange position. I don't like it and don't want to be here but will accept my fate. They'll have to take me kicking and screaming (that is if I can still kick and scream) out of here but if not I'll give the big guy on the other side crap. He'll wish he sent me the other way. On a lighter note is anybody going to be at the CdnPals site for a chat at 9pm EST tonight. (THURS.)
Enough ramblings for tonight. Hope everyone is well.