katekath
Distinguished member
- Joined
- Oct 2, 2008
- Messages
- 148
- Reason
- CALS
- Country
- SGP
- State
- SG
- City
- SG
Thank you for the info Carolan.
Just an update on my mum. Her neurologist doesn't want to see her till she sees the ENT specialist. The doc at the hospital told me they want to change the trach to smaller size.
I had been telling every doc I meet that O2 is not the issue and CO2 is the impt issue we should look at, but no one seemed to understand what I am talking about and I am getting very frustrated, up to the point of giving up. Even the physiotherapist working with my mum doesn't seemed to understand what ALS is. I have had people telling my mum she is going to recover and go back to her regular life. Argh. Sorry, I am feeling terrible about the medical system in SG now.
She now has MRSA infection at her stoma and I'm terribly worried. Please keep her in your prayers. My abusive father went crazy on her at the hospital. He is uncontrollable and it is highly frustrating trying to get him to calm down, while I am trying very hard not to argue with him.
It had been a chaotic Christmas and I hope things will get better.
Just an update on my mum. Her neurologist doesn't want to see her till she sees the ENT specialist. The doc at the hospital told me they want to change the trach to smaller size.
I had been telling every doc I meet that O2 is not the issue and CO2 is the impt issue we should look at, but no one seemed to understand what I am talking about and I am getting very frustrated, up to the point of giving up. Even the physiotherapist working with my mum doesn't seemed to understand what ALS is. I have had people telling my mum she is going to recover and go back to her regular life. Argh. Sorry, I am feeling terrible about the medical system in SG now.
She now has MRSA infection at her stoma and I'm terribly worried. Please keep her in your prayers. My abusive father went crazy on her at the hospital. He is uncontrollable and it is highly frustrating trying to get him to calm down, while I am trying very hard not to argue with him.
It had been a chaotic Christmas and I hope things will get better.