...was today. After a thorough clinical examination the pulmonologist told me I had no evidence of pulmonary dysfuntion. He referred me for Forced Vital Capacity test to get a baseline. He then told me that in more than 20 years of seeing als patients I was the first he had ever seen with no evidence of even slight pulmonary interference after three years of symptoms. He also noted the amount of strength in my legs and upper body, then said "It looks like you may be one of the lucky ones with very slow progression".
"Lucky ones"? Well, within the context of being diagnosed with ALS, I'll take it. Let's hope the fvc test confirms his observations. Getting "good news" from a doctor after getting this diagnosis is pretty rare, right? I walked out of his office feeling better than I have in some time. So (despite these darn fascics) today was a good day!
"Lucky ones"? Well, within the context of being diagnosed with ALS, I'll take it. Let's hope the fvc test confirms his observations. Getting "good news" from a doctor after getting this diagnosis is pretty rare, right? I walked out of his office feeling better than I have in some time. So (despite these darn fascics) today was a good day!