ALS/MND Support Group Forums - View Single Post

Paul Wicks · 10-31-2008, 09:13 AM

Hi all,

Just a quick note to say we've recently added a new feature for patients with PLS. Previously if you joined the ALS/PMA/PLS community and had PLS you didn't get the percentile curve backdrops that the ALS patients had. I'm pleased to say that now that we have 150+ PLS members we have enough data to create these curves, and so if you sign up and enter some ALSFRS-R scores you will be able to see how your PLS is progressing relative to other patients.

Hope you find it useful / interesting!

Best wishes

Paul Wicks

10-31-2008, 09:13 AM	#1 (permalink)
Paul Wicks New Member (Say Hi) Registered Member Join Date: 2006 Posts: 20	New features for PLS patients Hi all, Just a quick note to say we've recently added a new feature for patients with PLS. Previously if you joined the ALS/PMA/PLS community and had PLS you didn't get the percentile curve backdrops that the ALS patients had. I'm pleased to say that now that we have 150+ PLS members we have enough data to create these curves, and so if you sign up and enter some ALSFRS-R scores you will be able to see how your PLS is progressing relative to other patients. Hope you find it useful / interesting! Best wishes Paul Wicks