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Old 10-17-2008, 10:06 PM #1 (permalink)
Tanya Tanya is offline
New Member
 
Join Date: 2008
City: Weir
State: Kansas
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 11
Tanya is on a distinguished road
Tanya Tanya is offline
New Member
Join Date: 2008
City: Weir
State: Kansas
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 11
Tanya is on a distinguished road
Question Is my sil misdiagnosed?

My sil was told three weeks ago that she had ALS and put on the drug Rilutek. She was told to take for a month and then come back and they would test and see if she could become a member of a trial. She does not have an appointment for her second opinion until next month. She was recently told (not by a health care professional) that there is a disease out their that resembles ALS, but, isn't. She doesn't know what its called and I'm concerned she may go off her meds. Would an ALS clinic misdiagnos her and tell her that she has this disease without being certain. She had a whole battery of tests. How reliable are they. Any input on this would be greatly appreciated. Also, does anyone know what she could possibly be talking about (the other disease). We are so confused. Thanks Tany
Tanya is offline