sdsyd
Distinguished member
- Joined
- May 22, 2008
- Messages
- 329
- Country
- US
- State
- sd
- City
- piedmont
Hi all. Went back to neuro today and he says he is baffled by my symptoms. I am going tomorrow to have B12 and CK checked and then he recommended getting a second opinion and going to either Denver ( University of Colorado) or Mayo.(Rochester) He said it would be pointless to do an EMG if we are going to one of those places because they will just repeat the tests, and that they are very administer specific. He doesn't want to elude to a diagnosis, but it certainly could be the beginning of MND, which is why he recommends going to see a specialist, and he could follow up on my care after I go to one of those places. He notices some more atrophy in the left arm, but definately not marked. SO- I am still undignosed but my question to any of you is this- we live in SD. Denver is a lot closer, but is Mayo Clinic better? Or should I see a different neuro here?
S.O.S. I am frustrated. I was really hoping this guy could give me a diagnosis. My MRI's are all clean- even w/ contrast dye.
I know many of you understand the frustration of not having answers...which is why this is a great place to come and seek advice from people who have been there. AND MAYBE JUST MAYBE I just need some B-12 shots. ( fingers, toes and eyeballs crossed!) He again commented that my RBC's are a bit enlarged and that was the only comment he made on my previous bloodwork.
THANKS GUYS!
~Cindy
S.O.S. I am frustrated. I was really hoping this guy could give me a diagnosis. My MRI's are all clean- even w/ contrast dye.
I know many of you understand the frustration of not having answers...which is why this is a great place to come and seek advice from people who have been there. AND MAYBE JUST MAYBE I just need some B-12 shots. ( fingers, toes and eyeballs crossed!) He again commented that my RBC's are a bit enlarged and that was the only comment he made on my previous bloodwork.
THANKS GUYS!
~Cindy