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ellen s

New member
Joined
Jun 22, 2008
Messages
3
Reason
PALS
Diagnosis
06/2004
Country
US
State
California
City
Bridgeville
I have been an ALS patient for four years now on bipap 24/7 and have started experiencing an awful "metallic" taste and a burning sensation in my nose, lips, mouth, eyes and lungs. Has anyone else with a similar problem found anything that could help?
thanks ellen
 
It may be coming from the Bipap .You may have a sinus infection. Go see an ENT specialist He may have an answer. I dont think its from the ALS.


PAT
 
obviously i have spoken to a doctor about these symptoms with no answers i was hoping i might find somone in a similar situation thankyou for your response
 
I "googled" the metallic taste issue and there are a number of reasons, but the burning sensation in your eyes, throat and tongue might also be a clue. I guess if your doctors are not worried then that is a good thing, but still, it must be very annoying!
 
Does the bottom of the humidifier have a metal bottom? I have a friend with a CPAP that had the bottom of his start to corrode and little metal particles started floating in the water. Something to check.
AL.
 
thanks for the ideas im going to check into the humidifier see if that has anything to do with it im reaching here
cheers
 
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