MinFoy
New member
- Joined
- Mar 16, 2019
- Messages
- 4
- Reason
- Other
- Country
- Uk
- State
- Hertfordshire
- City
- Borehamwood
Hi everyone; let me introduce myself. My name is Yasmin and I am a 25 year old female. I hate that I’ve come here and I wish I didn’t get to this point because I feel absolutely awful for doing so but the anxiety ended me up in the hospital and I am at my lowest point with this fear or possibility and I thought I would come to the best. First of thank you for any reply I get and any advice I get, all of you are incredibly brave and wonderful and I am sorry if I came here to waste your time.
Let me tell you where my journey started with this fear or possibility. Around December time I began taking an SSRI for anxiety and OCD (obviously) and I began to get muscle twitches. I stopped the SSRI and they went away but then they came back- full force. I didn’t notice them focally, I assume they started all over at first. They have been non stop since then. Mostly worse in my feet and calves. But they can jump between legs, face, feet, head, other unfortunate places.
I first went to my GP about these a few weeks ago and he said he sees nothing of concern but I should see a neurologist regardless. As I am moving to the states to be married; I didn’t have time to wait for the NHS so I looked one up and found someone that was private and went to him this Wednesday. I was with him for about two hours. He did everything you would expect, toe standing, balance tests. All were well. Did my reflexes, said they were all normal except some brisk reflexes in my knees on both sides (mentioned to me this is normal in young people) and that I had an absent abdominal reflex that he didn’t seem to worried about. Everything else was normal except he said I had an essential tremor.
He diagnosed me with something called a central nervous system sensitivity (as I was also having strange sensations) and the tremor, and I said could you check for weakness and he laughed and said I wasn’t weak. He then got up and pushed down on my arms and they didn’t move and he laughed. I told him about my fears and he said I had more chance of finding out I was a man and told me to take it off the table. He was lovely,, but quite arrogant and this made me lose some faith as him as he made a few silly statements that weren’t true to my knowledge. So I left and felt okay. No weakness, no atrophy. And he couldn’t see any of my twitches so didn’t even feel comfortable giving me a BFS diagnosis.
That led me to google everything when I got home
(Obviously) and I googled what an absent abdominal reflex meant, and ended up on another spiral. So I ended up in A and E (ER for you wonderful American folk) and they at first thought I had a stroke because I was complaining of weakness and jerking and a headache. When I saw the doctor she did all the same tests as the other neuro but actually checked for weakness in my legs hands and arms. She said nothing was there. I was fine. I even grasped her hand a little two tight. She said my reflexes were all good. She couldn’t get any babinski movement from me at all, and she tried a few times. I assume that’s a good thing.
Bloods were fine, she told me to get an MRI and my thyroid checked. But I came back to the devil again (google) and went into a panic attack over my babinski as I read no reaction could also signal something bad and then others said it was normal so I am conflicted on those.
Anyway, I can go for an EMG but it would be self payed and boy are they expensive. I don’t know whether I want to feed into the fear either or just accept everything and move on until I have weakness or don’t.
I came here for advice from the best, and I appreciate any I get. Does this sound like ALS? I have read and searched so many conflicting stories and articles that I don’t know whether or not to go forth with the EMG or drop this all together.
I appreciate you all. Thank. You for taking the time to read my post as I have read so many of yours and I can’t tell you how greatful I am to everyone here for even looking.
Have a wonderful evening.
Love and lots of light,
Yasmin xo
Let me tell you where my journey started with this fear or possibility. Around December time I began taking an SSRI for anxiety and OCD (obviously) and I began to get muscle twitches. I stopped the SSRI and they went away but then they came back- full force. I didn’t notice them focally, I assume they started all over at first. They have been non stop since then. Mostly worse in my feet and calves. But they can jump between legs, face, feet, head, other unfortunate places.
I first went to my GP about these a few weeks ago and he said he sees nothing of concern but I should see a neurologist regardless. As I am moving to the states to be married; I didn’t have time to wait for the NHS so I looked one up and found someone that was private and went to him this Wednesday. I was with him for about two hours. He did everything you would expect, toe standing, balance tests. All were well. Did my reflexes, said they were all normal except some brisk reflexes in my knees on both sides (mentioned to me this is normal in young people) and that I had an absent abdominal reflex that he didn’t seem to worried about. Everything else was normal except he said I had an essential tremor.
He diagnosed me with something called a central nervous system sensitivity (as I was also having strange sensations) and the tremor, and I said could you check for weakness and he laughed and said I wasn’t weak. He then got up and pushed down on my arms and they didn’t move and he laughed. I told him about my fears and he said I had more chance of finding out I was a man and told me to take it off the table. He was lovely,, but quite arrogant and this made me lose some faith as him as he made a few silly statements that weren’t true to my knowledge. So I left and felt okay. No weakness, no atrophy. And he couldn’t see any of my twitches so didn’t even feel comfortable giving me a BFS diagnosis.
That led me to google everything when I got home
(Obviously) and I googled what an absent abdominal reflex meant, and ended up on another spiral. So I ended up in A and E (ER for you wonderful American folk) and they at first thought I had a stroke because I was complaining of weakness and jerking and a headache. When I saw the doctor she did all the same tests as the other neuro but actually checked for weakness in my legs hands and arms. She said nothing was there. I was fine. I even grasped her hand a little two tight. She said my reflexes were all good. She couldn’t get any babinski movement from me at all, and she tried a few times. I assume that’s a good thing.
Bloods were fine, she told me to get an MRI and my thyroid checked. But I came back to the devil again (google) and went into a panic attack over my babinski as I read no reaction could also signal something bad and then others said it was normal so I am conflicted on those.
Anyway, I can go for an EMG but it would be self payed and boy are they expensive. I don’t know whether I want to feed into the fear either or just accept everything and move on until I have weakness or don’t.
I came here for advice from the best, and I appreciate any I get. Does this sound like ALS? I have read and searched so many conflicting stories and articles that I don’t know whether or not to go forth with the EMG or drop this all together.
I appreciate you all. Thank. You for taking the time to read my post as I have read so many of yours and I can’t tell you how greatful I am to everyone here for even looking.
Have a wonderful evening.
Love and lots of light,
Yasmin xo
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