Kellbellab
New member
- Joined
- Jan 6, 2019
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 01/2019
- Country
- US
- State
- Florida
- City
- Jacksonville
My pALS is my mom. She is newly diagnosed with bulbar onset ALS. As of now her mobility is not impacted too much, just her speech, swallowing and breathing.
We have been discussing living arrangements as her mobility and breathing decline.
Other pALS out there, what did you decide? Did you have a choice to move? Why? Was your home disability “accessible”? What were major factors in your decisions? What factors should we consider?
My mom is 67 years old on Medicare (no VA benefits), no long term insurance, owns a home (an hour away from me - I live 15 min from Mayo in FL), and collects her social security as well as my father’s (deceased 2.12). She is currently retired but is an artist in the community.
I know there’s no “one size fits all” with ALS. I’m just trying to facilitate her having a comfortable and optimal living arrangement with the best care she requires. I work full time but plan to care for her as needed.
Do most pALS chose to stay home, move in with family or long term care facility?
At what point does hospice become involved?
Wow. That was a lot.
I appreciate any and all feedback.
We have been discussing living arrangements as her mobility and breathing decline.
Other pALS out there, what did you decide? Did you have a choice to move? Why? Was your home disability “accessible”? What were major factors in your decisions? What factors should we consider?
My mom is 67 years old on Medicare (no VA benefits), no long term insurance, owns a home (an hour away from me - I live 15 min from Mayo in FL), and collects her social security as well as my father’s (deceased 2.12). She is currently retired but is an artist in the community.
I know there’s no “one size fits all” with ALS. I’m just trying to facilitate her having a comfortable and optimal living arrangement with the best care she requires. I work full time but plan to care for her as needed.
Do most pALS chose to stay home, move in with family or long term care facility?
At what point does hospice become involved?
Wow. That was a lot.
I appreciate any and all feedback.