Amylife
Member
- Joined
- Nov 25, 2018
- Messages
- 16
- Reason
- Learn about ALS
- Country
- US
- State
- Florida
- City
- Gulf Beaches
Some have asked for updates from my appts so I will do so if that's ok. I met with my neurologist and have had significant atrophy within last two months of seeing him, a trophy on my right leg as well as atrophy under my ribs on my right side. He took the measurements and was concerned with my manometry results and bulbar type symptoms and does believe it to be a MN disease however he is sending me to shands at neuromuscular clinic and could not understand how USF clinic could tell me I am fine. Especially with atrophy on top of my right foot, right quad and tongue, slurring speech. I will update you next week after Shands. Thank you to those who have reached out with words of kindness in this difficult time and thank you to those who have provided their thoughtful and warm comments.