Silvermaple
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- Nov 16, 2018
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I'm just going to keep this short as I'm already 99% sure I have ALS and just want someone to confirm that my hands look like split hand syndrome.
My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today. I've noticed recently that they seem to be more confined to my legs and feet now. I also sometimes have a feeling like bugs are on me or a tingling similar to when a limb falls asleep but I've seen PALS in here that have the bug feeling so I know it's ALS related. I thought the twitches were from being pregnant but when I gave birth in October they didn't go away. My leg also twitched yesterday when I was standing which I know is ALS related because muscles don't normally twitch when they are flexed/in use.
I also have what I'm pretty sure are brisk reflexes. My legs also shake when I bend my knees if I have my legs out straight on front of me and lower them. It happens especially if I so it slowly. Like imagine sitting in a chair with your legs out straight and bending them, my knees/legs shake.
So now the worst symptom: split hand syndrome. I went to my gyno yesterday and asked him about the dents in my thenar muscles on both of my hands and he said it looked like I'm losing muscle there. I can only see it when I flex my hands into an L shape. I know its not carpal tunnel as I have no symptoms at all. Split hand syndrome is 100% only associated with ALS. My thenar on my left hand also twitched so bad a few months ago that it was involuntarily moving my thumb. I don't remember if moving it stopped it or not but I don't think so, which is know is bad news. I've attached photos of the atrophy in my hands
The strangest part is that I have weakness in my thumbs or hands even though I have lost so much muscle. But u found this article that states you can have atrophy before weakness in ALS:
https://emedicine.medscape.com/article/1170572-clinical#b1
So someone please confirm that my hands are split hand syndrome. I know I need to go get diagnoses but I'm scared to death. I'm about to turn 30 next month and I have 2 kids under the age of 2. I've only been married for a year. I feel like my life was just beginning and now it's over. I can't sleep at night, I'm up all night sick with worry. I'm on the verge of throwing up.
My symptoms started back in June of this year when I was pregnant with my son. I started to have random twitches all over which I still have today. I've noticed recently that they seem to be more confined to my legs and feet now. I also sometimes have a feeling like bugs are on me or a tingling similar to when a limb falls asleep but I've seen PALS in here that have the bug feeling so I know it's ALS related. I thought the twitches were from being pregnant but when I gave birth in October they didn't go away. My leg also twitched yesterday when I was standing which I know is ALS related because muscles don't normally twitch when they are flexed/in use.
I also have what I'm pretty sure are brisk reflexes. My legs also shake when I bend my knees if I have my legs out straight on front of me and lower them. It happens especially if I so it slowly. Like imagine sitting in a chair with your legs out straight and bending them, my knees/legs shake.
So now the worst symptom: split hand syndrome. I went to my gyno yesterday and asked him about the dents in my thenar muscles on both of my hands and he said it looked like I'm losing muscle there. I can only see it when I flex my hands into an L shape. I know its not carpal tunnel as I have no symptoms at all. Split hand syndrome is 100% only associated with ALS. My thenar on my left hand also twitched so bad a few months ago that it was involuntarily moving my thumb. I don't remember if moving it stopped it or not but I don't think so, which is know is bad news. I've attached photos of the atrophy in my hands
The strangest part is that I have weakness in my thumbs or hands even though I have lost so much muscle. But u found this article that states you can have atrophy before weakness in ALS:
https://emedicine.medscape.com/article/1170572-clinical#b1
So someone please confirm that my hands are split hand syndrome. I know I need to go get diagnoses but I'm scared to death. I'm about to turn 30 next month and I have 2 kids under the age of 2. I've only been married for a year. I feel like my life was just beginning and now it's over. I can't sleep at night, I'm up all night sick with worry. I'm on the verge of throwing up.