Worriedperson
New member
- Joined
- Nov 8, 2018
- Messages
- 8
- Reason
- Other
- Country
- US
- State
- Tx
- City
- Austin
I’ve read the sticky note that said that this is not a progressive sensory disease. I felt immediate calm when I read that. But then personal experiences of people with ALS seem in line with what I am experiencing.
For about 10 days I have experienced sudden muscle weakness. I am still a 5/5 on strength and have passed all reflex tests. I am experiencing no twitching, no clinical weakness like a dropped foot. It feels like weights are attached to my forearms/hands and legs. I haven’t lost coordination though it’s not without thought. I feel like I could.
Today, the words als and ms testing were mentioned. I don’t seem to fit MS because I have no pain. No tingling, no spasms, no cramping, no double vision. I can run, I can swallow. It just feels like maybe I’ll fall down or like my hands and wrists are weak, though they function. It can feel like I’m over shooting a motion or it is not articulate. Or maybe like I’ll trip. Maybe I don’t hold things as steady or I feel like I have to tell myself to walk.
It makes me believe it is not ALS because it is happening in both arms and legs and onset has been about 10 days now, progressively getting worse though I don’t lose feeling of function. They’re just weighted. But they are still sending me to a neurologist which btw is going to take a month plus. It seems like everyone has had tremors or lost the use of a limb or specific muscle. Could this be als with my symptoms? Or should I expect function loss after the weighted feeling fades or intensifies? Does that happen? I think I’m confused when I hear about progressive weakness from patients but then I really want to hear it’s like the sticky note says.... like no weakness, no heavyness? Anyway. It’s giving me anxiety and I’m usually pretty even keel. Would just like to know if anyone else experienced weighted limbs (not just one limb) before either losing function or being diagnosed.
I have a young son and would like to be as prepared as possible with how this is progressing. Thanks you!
For about 10 days I have experienced sudden muscle weakness. I am still a 5/5 on strength and have passed all reflex tests. I am experiencing no twitching, no clinical weakness like a dropped foot. It feels like weights are attached to my forearms/hands and legs. I haven’t lost coordination though it’s not without thought. I feel like I could.
Today, the words als and ms testing were mentioned. I don’t seem to fit MS because I have no pain. No tingling, no spasms, no cramping, no double vision. I can run, I can swallow. It just feels like maybe I’ll fall down or like my hands and wrists are weak, though they function. It can feel like I’m over shooting a motion or it is not articulate. Or maybe like I’ll trip. Maybe I don’t hold things as steady or I feel like I have to tell myself to walk.
It makes me believe it is not ALS because it is happening in both arms and legs and onset has been about 10 days now, progressively getting worse though I don’t lose feeling of function. They’re just weighted. But they are still sending me to a neurologist which btw is going to take a month plus. It seems like everyone has had tremors or lost the use of a limb or specific muscle. Could this be als with my symptoms? Or should I expect function loss after the weighted feeling fades or intensifies? Does that happen? I think I’m confused when I hear about progressive weakness from patients but then I really want to hear it’s like the sticky note says.... like no weakness, no heavyness? Anyway. It’s giving me anxiety and I’m usually pretty even keel. Would just like to know if anyone else experienced weighted limbs (not just one limb) before either losing function or being diagnosed.
I have a young son and would like to be as prepared as possible with how this is progressing. Thanks you!