Tillie is right.
Here is my perspective, which is really just saying what she said in a bit different way.
I recognized early on that my capacity to do things was greatly diminished. I tried to fight it, but found the only successful approach was to accept it.
Now that I know I have limited capacity, I have arranged my life so that I don't do things that don't provide value, use assistive devices whenever possible, and do the things that really need doing in different, more energy-conserving ways.
I started using a wheelchair pretty early, ordering my first wheelchair within a month of being diagnosed. Deciding to use a wheelchair is one of the best decisions I have made. I can still do many of the things I enjoy, but in a way that does not use up my limited capacity, because the wheelchair does all the work!
I love to cook, so bought new knives that fit my hand in a way that reduces how much hand strength I need to use them.
I use tools for virtually everything so that I can use the leverage they provide rather than trying to produce the desired result using brute strength.
I also sleep whenever I need to and for as long as I need to. Some weeks I sleep 20 hours a day. Some days, I can get by with 10 hours of sleep. i let my body tell me what I need and then I sleep that much.
I schedule everything so that I can cancel if I am too tired to keep the appointment. Folks have been amazingly understanding.
Of course, my wife still thinks I do too much
.
Steve