anitabean
New member
- Joined
- Jul 11, 2018
- Messages
- 6
- Reason
- CALS
- Diagnosis
- 07/2018
- Country
- CA
- State
- BRITISH COLUMBIA
- City
- Cobble Hill
My husband was diagnosed in June with PLS. He had mild speech difficulties (slurring when tired) starting a year prior that have progressed since. He is increasingly nasal and slurred; he must speak each word slowly to be understood. He now has some toe drag with each foot and needs a cane for stability. We pray his arms and hands will be the last affected as he is a potter and his art means so much to him. My question is for those whose symptoms began with speech: how long does he likely have before his speech becomes unintelligible? I know PLS is different for everyone, but my husband had hoped to record enough of his speech to synthesize it for use when he can't talk anymore, and it seems to be declining more rapidly these last couple of months.
Thank you for any insights.
Thank you for any insights.