Dee123
New member
- Joined
- Sep 15, 2018
- Messages
- 5
- Reason
- Learn about ALS
- Country
- UK
- State
- Cornwall
- City
- Uk
Hi all
Firstly, you are all incredible and the way you put up with the clinically anxious is astounding.
I have over the last two years had significant health challenges, since developing severe Sepsis, which resulted in kidney and respiratory failure. Since that time I have undoubtedly suffered from Health Anxiety, compounded by discovering I have had a silent stroke (asymptomatic, or so I thought) and that I have a chronic immune disease which is causing me kidney disease. I also had a retinal detachment 10 months ago. All of this in the last two years. I now take 10 pills a day to keep various things in check. Clearly though, compared to ALS, this is a walk in the park.
I feel stupid even being here but I have been having loads of strange things happening for the last 6 weeks and made the mistake of googling them. I have a young family (2 kids) and am running a company that gives me lots of stress but I've always managed this before. I am a 45 year old man and admit I am very unhealthy (obese) and despite losing 80lbs earlier this year (on 6 months), I need to lose at lease as much again.
In the last month, I had a strange sensation in my left foot one morning, like Squelching or pulsing feeling in bottom of my foot but no visible fasc. It went on for about an hour, rhythmically pulsing away. Now my foot feels loose and without normal sensation. It's not numb to touch but isn't "normal".
I also get strange feelings all over my skin, like Paresthesia, in my feet and legs and occasionally my face. Like crawling or pins and needles but mainly and daily in my feet. The left foot especially. They are invisible, like fibrillations. Nothing to see, only sense.
For the last 4 weeks, I've had a really sore left leg, mainly my left calf and my left hamstring. It is as bad in the morning as night, exercise helps slightly but not much. I should point out due to my ckd, I get some oedema in my legs, the left one especially but this soreness is new, the oedema isn't.
Just in the last few days, my left little finger has become sore when I use it, like a slight arthritic feeling and perceived weakness (I doubt it is clinical).
To compound my fears, I walked half a mile yesterday (which was a real struggle, more than even a month ago) and just as I was walking back towards my house, I managed to twist my left ankle sideways and now the ankle is throbbing as well as my foot and leg twitching and pulsing.
I also have a really sore neck which feels weak and is getting worse and randomly, at times Inam getting strange pains in my flanks. These feelings do at times feel a little bit MS like and I also get visual disturbances ( fleeting) at times, like flashing traces in my eyes when I am tired. However, I had an MRI 10 months ago when they found the infarction in my brain and there were no lesions then. I also regularly get slightly stiff fingers in both hands when I wake and this is becoming more regular during the day.
I realise that I am coming across as hypochondriac here, but this is so hard to process and having had so many health issues in such a short time, Infeel "marked" in some way, like it's only a matter of time before something finishes the job on me.
I have a lot on my shoulders but the soreness, the fact that over the last 3-4 years all my toes have also lost sensation (again, not numb but loss of sensation) and the recent squelching, pulsing feeling in my left foot has me going crazy with fear. There is conflicting stuff online, even in this forum about sensation. The Sticky says it's not a sensory loss but lots of examples of ALS and other MNDs starting with aches, cramps and other sensory issues are all over. I have a lot of generalised atrophy all over after Sepsis and because I am unfit but the recent pain/soreness, paresthesia/pins and needles and squelching feelings are so hard to deal with.
I have had strength tests and visual inspections by two GPs, they both said all looked ok but another GP told me over the phone that the feelings I was getting in my face (including an intermittent bad taste in my mouth and a burnt feeling in my tongue) exhibited signs of Lower Motor involvement. That obviously hugely triggered my anxiety even further.
So my question is, if there are examples of ALS or other Motor Neuronal disorders that start with sensiry issues and pain, an I one or am I just in need of a fitness drive, more psychological help and a long holiday?
I'm sorry for the long and self-indulgent monologue, and I've waited weeks to write this because I kept hoping the symptoms would go away.
Firstly, you are all incredible and the way you put up with the clinically anxious is astounding.
I have over the last two years had significant health challenges, since developing severe Sepsis, which resulted in kidney and respiratory failure. Since that time I have undoubtedly suffered from Health Anxiety, compounded by discovering I have had a silent stroke (asymptomatic, or so I thought) and that I have a chronic immune disease which is causing me kidney disease. I also had a retinal detachment 10 months ago. All of this in the last two years. I now take 10 pills a day to keep various things in check. Clearly though, compared to ALS, this is a walk in the park.
I feel stupid even being here but I have been having loads of strange things happening for the last 6 weeks and made the mistake of googling them. I have a young family (2 kids) and am running a company that gives me lots of stress but I've always managed this before. I am a 45 year old man and admit I am very unhealthy (obese) and despite losing 80lbs earlier this year (on 6 months), I need to lose at lease as much again.
In the last month, I had a strange sensation in my left foot one morning, like Squelching or pulsing feeling in bottom of my foot but no visible fasc. It went on for about an hour, rhythmically pulsing away. Now my foot feels loose and without normal sensation. It's not numb to touch but isn't "normal".
I also get strange feelings all over my skin, like Paresthesia, in my feet and legs and occasionally my face. Like crawling or pins and needles but mainly and daily in my feet. The left foot especially. They are invisible, like fibrillations. Nothing to see, only sense.
For the last 4 weeks, I've had a really sore left leg, mainly my left calf and my left hamstring. It is as bad in the morning as night, exercise helps slightly but not much. I should point out due to my ckd, I get some oedema in my legs, the left one especially but this soreness is new, the oedema isn't.
Just in the last few days, my left little finger has become sore when I use it, like a slight arthritic feeling and perceived weakness (I doubt it is clinical).
To compound my fears, I walked half a mile yesterday (which was a real struggle, more than even a month ago) and just as I was walking back towards my house, I managed to twist my left ankle sideways and now the ankle is throbbing as well as my foot and leg twitching and pulsing.
I also have a really sore neck which feels weak and is getting worse and randomly, at times Inam getting strange pains in my flanks. These feelings do at times feel a little bit MS like and I also get visual disturbances ( fleeting) at times, like flashing traces in my eyes when I am tired. However, I had an MRI 10 months ago when they found the infarction in my brain and there were no lesions then. I also regularly get slightly stiff fingers in both hands when I wake and this is becoming more regular during the day.
I realise that I am coming across as hypochondriac here, but this is so hard to process and having had so many health issues in such a short time, Infeel "marked" in some way, like it's only a matter of time before something finishes the job on me.
I have a lot on my shoulders but the soreness, the fact that over the last 3-4 years all my toes have also lost sensation (again, not numb but loss of sensation) and the recent squelching, pulsing feeling in my left foot has me going crazy with fear. There is conflicting stuff online, even in this forum about sensation. The Sticky says it's not a sensory loss but lots of examples of ALS and other MNDs starting with aches, cramps and other sensory issues are all over. I have a lot of generalised atrophy all over after Sepsis and because I am unfit but the recent pain/soreness, paresthesia/pins and needles and squelching feelings are so hard to deal with.
I have had strength tests and visual inspections by two GPs, they both said all looked ok but another GP told me over the phone that the feelings I was getting in my face (including an intermittent bad taste in my mouth and a burnt feeling in my tongue) exhibited signs of Lower Motor involvement. That obviously hugely triggered my anxiety even further.
So my question is, if there are examples of ALS or other Motor Neuronal disorders that start with sensiry issues and pain, an I one or am I just in need of a fitness drive, more psychological help and a long holiday?
I'm sorry for the long and self-indulgent monologue, and I've waited weeks to write this because I kept hoping the symptoms would go away.