Tedstehr
Distinguished member
- Joined
- Aug 25, 2017
- Messages
- 199
- Reason
- PALS
- Diagnosis
- 08/2017
- Country
- CA
- State
- BC
- City
- New Westminster
After reading a few threads about the Vancouver ALS Clinic I spoke to the main contact there about "Giving Hope without False Hope." I sent a follow up email listing some things like the supplement list Sunnybrook gives out (thank you Al!) so people can feel they are doing something.
I am hoping you can help me with a project. Can you please share with me any positive things any healthcare professionals said to you or did that lifted your spirits or gave you hope? For example, a respirologist said to me "we don't know what is going to happen. Maybe it will not progress past your legs." It did, but it made me feel better for a while and I never felt bad she had said it.
I will compile the posts and share them with the clinic.
I would love to hear from PALS and CALS. Thanks all!
I am hoping you can help me with a project. Can you please share with me any positive things any healthcare professionals said to you or did that lifted your spirits or gave you hope? For example, a respirologist said to me "we don't know what is going to happen. Maybe it will not progress past your legs." It did, but it made me feel better for a while and I never felt bad she had said it.
I will compile the posts and share them with the clinic.
I would love to hear from PALS and CALS. Thanks all!