beauty4everyone
Distinguished member
- Joined
- Jul 5, 2018
- Messages
- 264
- Reason
- PALS
- Diagnosis
- 04/2018
- Country
- US
- State
- GA
- City
- Someplace
Salutations of the Day
*Having ALS seems unreal. I wake each morning reminding myself I have it. Checking to see what I can still do. Yesterday, my knees buckled and I collapsed. Luckily, I could hold myself off the floor until my family dragged me up into bed. Leg strength to raise myself from the floor no longer exists. I hope my arms hold out for a long time.
*Tomorrow is the Big Day: Telling Church Sunday school friends I have ALS. Each of us will tell our own class the same morning. No one can say some were favored over others. Their knowing confirms it’s real. Our family is strong together; telling others face-to-face is difficult. I hope I can say what’s needed without crying.
*It’s important to think how friends can help. If they ask, tell them. Some drift away because they are afraid of saying the wrong thing, or don’t know what to say or do. We have to educate them. Make them feel needed. Ask for hugs, cards, calls, a meal, a visit. If you don’t hear from them, call them. Tell them you miss seeing them. Plan to go out together while you can. Remind them, you are still you. That you HAVE a disorder, you are NOT the disorder!
*Reach out, take their hand, tell them how meaningful their friendship is. Do whatever is comfortable for you.
*Those who love you will stay. Others will not. It wounds our heart, but let it go. As my husband once told me, “Consider the source”. I too, have a heart wounded by friends. It has been difficult, but there’s a time to lay it down. There's still a world out there. I imagine caring people on these forums can become new friends. "Hope springs eternal".
*May you discover something today to lift your spirit. May blessings abound. B. 8)
*Having ALS seems unreal. I wake each morning reminding myself I have it. Checking to see what I can still do. Yesterday, my knees buckled and I collapsed. Luckily, I could hold myself off the floor until my family dragged me up into bed. Leg strength to raise myself from the floor no longer exists. I hope my arms hold out for a long time.
*Tomorrow is the Big Day: Telling Church Sunday school friends I have ALS. Each of us will tell our own class the same morning. No one can say some were favored over others. Their knowing confirms it’s real. Our family is strong together; telling others face-to-face is difficult. I hope I can say what’s needed without crying.
*It’s important to think how friends can help. If they ask, tell them. Some drift away because they are afraid of saying the wrong thing, or don’t know what to say or do. We have to educate them. Make them feel needed. Ask for hugs, cards, calls, a meal, a visit. If you don’t hear from them, call them. Tell them you miss seeing them. Plan to go out together while you can. Remind them, you are still you. That you HAVE a disorder, you are NOT the disorder!
*Reach out, take their hand, tell them how meaningful their friendship is. Do whatever is comfortable for you.
*Those who love you will stay. Others will not. It wounds our heart, but let it go. As my husband once told me, “Consider the source”. I too, have a heart wounded by friends. It has been difficult, but there’s a time to lay it down. There's still a world out there. I imagine caring people on these forums can become new friends. "Hope springs eternal".
*May you discover something today to lift your spirit. May blessings abound. B. 8)