View Single Post
Old 08-07-2018, 09:16 AM #1 (permalink)
LK92's Avatar
LK92 LK92 is offline
New Member (Say Hi)
 
Join Date: 2018
City: Toronto
State: Ontario
Country: CA
Interest: Other
Posts: 8
LK92 is on a distinguished road
LK92 LK92 is offline
New Member (Say Hi)
LK92's Avatar
Join Date: 2018
City: Toronto
State: Ontario
Country: CA
Interest: Other
Posts: 8
LK92 is on a distinguished road
Default Seeking help on my symptoms, scared and depressed

Hello all,

I am desperately seeking for help regarding my symptoms. Doctors do not seem to listen to me or take me seriously so it would be really appreciated if anyone with the knowledge of ALS symptoms could help me.

I am an immigrant living in Canada, Toronto, 26 years old female.

Everything started in February 2018. One day I woke up with very sore tongue with inflamed papillae that has not gone since then. I always have this burning feeling and it also looks scalloped on the edge. The same time I noticed that I cannot swallow as easy as it used to be, I felt like the liquids stuck somewhere in my throat or even go to my nose, so I developed constant phlegm that I cannot swallow or spit. It is just constantly there giving me hoarse voice. I went to GP that time and he did not examine me thoroughly, and prescribed me acid medicine for 2 months. It did not help at all.

Then the doctor referred me to ENT specialist who did not notice anything bad just a bit of inflammation at the back of the throat with some mucus. I also did barium swallow which came back perfectly fine. I did not feel any weakness at that time (June 201 and had a lot of energy doing activities. But last month everything suddenly changed. I started to feel shortness of breath. One time after I swam just 10 minutes I experienced difficulty breathing and could not recover next 2 hours getting weakness and chills. That night I could not sleep waking up every 30 minutes. I thought I had problems with my heart so I went to ER next day but they said everything was fine. But I never recovered from that day. I never go to deep sleep, wake up constantly (even though feel very tired and want to sleep) feel like my muscles forget to breath. One week ago I got fasciculations all over the body but now they are mostly in my legs and they never stop. I asked my doctor to refer my to neuro but he said it takes a few weeks to see him. I have no problems with my speech so far.

My question is could it be some type of bulbar or respiratory onset? I know given my age it is almost impossible but I cannot find any other explanation of my symptoms. I had all kind of blood test which are perfect, abdominal ultrasound, chest X ray, EKG, barium swallow.

I am new to the healthcare system here and feel very scared an depressed because no one seems to care. I am here in Canada by myself and I feel very depressed. I am sorry for such a long text but I just do not know how to cope with all this. It takes too long to see a doctor.

Any advice would be appreciated.
Thank you all.
LK92 is offline