BrandonAZ
New member
- Joined
- Jul 16, 2018
- Messages
- 8
- Reason
- Other
- Country
- US
- State
- Washington
- City
- Seattle
Hi All -
Longtime lurker (seems the norm around this forum though, right?). 35 / M / Married with two young boys, 1 and 5. I wanted to start off with my prayers to those of you who are or have been impacted by this disease, and commend the strong community shown in these forums!
Always been active, mostly weightlifting and running. ~3 years ago I woke up experiencing excruciating left pain in my arm and pinky numbness. Long story short, came down to a diagnosis of ulnar neuropathy, and underwent a nerve transposition at the elbow (where they move the nerve), which never resolved my numbness.
This is obviously separate from anything ALS, however, starting around this same time my left shoulder started constantly twitching, and progressed to constant pain / aching. Shoulder MRIs showed nothing, was Dxd bursitis and sent to PT for months. As time went on, the twitching spread to my left tricep / bicep and neck, shoulder pain continued, and strength was decreased slightly on that side through today. Neurologist thought maybe thoracic outlet, and underwent more PT + cervical MRI. Results were foraminal stenosis of the RIGHT (not left) side, no spinal cord impact, arthritis, and abnormal bone marrow - which blood work follow-up was normal.
Over the last year, twitches started occurring on the right shoulder / back / arm as well, and I've chalked this up to the above findings. However, over the past 6 months the twitching has spread to my legs / calves, increased in frequency, and just the past month has progressed to bad cramping as well. My muscles are fatiguing a lot more easily, and the twitching again has continued to progress in frequency / locations.
I had an ultrasound at the neurologists office today in the brachial area, with them trying to nail down this thoracic outlet dx, but blood flow was normal and no scar tissue in area, structurally was fine. They also noticed the twitching, and was able to capture it in the ultrasound in both my calves, left tricep, and left shoulder.
I have a scheduled follow-up EMG next Monday. Blood work has been normal with *possible* hyperthyroid (followup on that tomorrow), but the progressive and constant twitching of both upper / lower limbs, jaw, cramping, increased muscle fatigue has me a bit worried. I'll follow-up as I get the EMG results Monday. Bless you all!
Longtime lurker (seems the norm around this forum though, right?). 35 / M / Married with two young boys, 1 and 5. I wanted to start off with my prayers to those of you who are or have been impacted by this disease, and commend the strong community shown in these forums!
Always been active, mostly weightlifting and running. ~3 years ago I woke up experiencing excruciating left pain in my arm and pinky numbness. Long story short, came down to a diagnosis of ulnar neuropathy, and underwent a nerve transposition at the elbow (where they move the nerve), which never resolved my numbness.
This is obviously separate from anything ALS, however, starting around this same time my left shoulder started constantly twitching, and progressed to constant pain / aching. Shoulder MRIs showed nothing, was Dxd bursitis and sent to PT for months. As time went on, the twitching spread to my left tricep / bicep and neck, shoulder pain continued, and strength was decreased slightly on that side through today. Neurologist thought maybe thoracic outlet, and underwent more PT + cervical MRI. Results were foraminal stenosis of the RIGHT (not left) side, no spinal cord impact, arthritis, and abnormal bone marrow - which blood work follow-up was normal.
Over the last year, twitches started occurring on the right shoulder / back / arm as well, and I've chalked this up to the above findings. However, over the past 6 months the twitching has spread to my legs / calves, increased in frequency, and just the past month has progressed to bad cramping as well. My muscles are fatiguing a lot more easily, and the twitching again has continued to progress in frequency / locations.
I had an ultrasound at the neurologists office today in the brachial area, with them trying to nail down this thoracic outlet dx, but blood flow was normal and no scar tissue in area, structurally was fine. They also noticed the twitching, and was able to capture it in the ultrasound in both my calves, left tricep, and left shoulder.
I have a scheduled follow-up EMG next Monday. Blood work has been normal with *possible* hyperthyroid (followup on that tomorrow), but the progressive and constant twitching of both upper / lower limbs, jaw, cramping, increased muscle fatigue has me a bit worried. I'll follow-up as I get the EMG results Monday. Bless you all!