Cherise77
Active member
- Joined
- Jun 18, 2018
- Messages
- 72
- Reason
- Loved one DX
- Diagnosis
- 07/2018
- Country
- CA
- State
- BC
- City
- Vancouver
Although we had a probable diagnosis a few weeks ago we were waiting to get into our ALS clinic for an official diagnosis from them. It still came as a big blow for my father and our family even though we were expecting it.
My question is his ALS functional scale rating was 46. Is that really positive for first appt?
Also he’s had symptoms now for just over a year. Mostly confined to weakness in right hand and twitching in arm as well as occasional twitching in every limb and stomach at times now. The neurologist says it’s slow progressing. Have others experienced a similar symptom onset? And if so how has your progression been?
As well what is everyone’s experience with how the progression stays. I know it can be different for everyone but generally does it stay pretty consistent or speed up at times?
Thank you for your help and time. I appreciate any info that I can tell my Father.
My question is his ALS functional scale rating was 46. Is that really positive for first appt?
Also he’s had symptoms now for just over a year. Mostly confined to weakness in right hand and twitching in arm as well as occasional twitching in every limb and stomach at times now. The neurologist says it’s slow progressing. Have others experienced a similar symptom onset? And if so how has your progression been?
As well what is everyone’s experience with how the progression stays. I know it can be different for everyone but generally does it stay pretty consistent or speed up at times?
Thank you for your help and time. I appreciate any info that I can tell my Father.