IgorZilio
Active member
- Joined
- Jan 10, 2017
- Messages
- 51
- Reason
- PALS
- Diagnosis
- 05/2018
- Country
- BR
- State
- RJ
- City
- Rio de Janeiro
Hey everyone,
A few days ago I had very bad cramps in my right leg, groin/thigh, to the point of screaming. It was out of the blue, I was just sitting. Yesterday almost the same thing in my left arm and hand. My pinky actually curled because of the cramp.
Since then I'm with this horrible pain, I'm simply unable to lift my right leg anymore because of it and to stand I have to lean on something to get some impulse. Putting on pants hasn't been the highlight of my days. My left arm is already weak, but now because of the pain, I lost some range of movement. I believe this is a result of cramp + spastic muscles, as they do not recover very well from stress.
I have an appointment with my neurologist on August 1st, so I'll ask him what he would recommend, but until then has anyone ever been through something like this? Secondary pain from cramps and some loss of movement, even if temporary? I don't know how long it'll take for the muscles to be able to recover. I'm on 40mg of Baclofen and it seemed to be working, I was mostly fine but these past few days have been awful. Today I was yawning and my jaw cramped, so I was 'locked' yawning for a few seconds. Thankfully no debilitating pain after that, just some soreness.
I'm afraid because I really don't know if out of nowhere I'll start cramping and fall or something. I was preparing to face a lot of things with this disease but this level of pain was not something I was imagining. Any help is greatly appreciated.
Thank you! :wink:
A few days ago I had very bad cramps in my right leg, groin/thigh, to the point of screaming. It was out of the blue, I was just sitting. Yesterday almost the same thing in my left arm and hand. My pinky actually curled because of the cramp.
Since then I'm with this horrible pain, I'm simply unable to lift my right leg anymore because of it and to stand I have to lean on something to get some impulse. Putting on pants hasn't been the highlight of my days. My left arm is already weak, but now because of the pain, I lost some range of movement. I believe this is a result of cramp + spastic muscles, as they do not recover very well from stress.
I have an appointment with my neurologist on August 1st, so I'll ask him what he would recommend, but until then has anyone ever been through something like this? Secondary pain from cramps and some loss of movement, even if temporary? I don't know how long it'll take for the muscles to be able to recover. I'm on 40mg of Baclofen and it seemed to be working, I was mostly fine but these past few days have been awful. Today I was yawning and my jaw cramped, so I was 'locked' yawning for a few seconds. Thankfully no debilitating pain after that, just some soreness.
I'm afraid because I really don't know if out of nowhere I'll start cramping and fall or something. I was preparing to face a lot of things with this disease but this level of pain was not something I was imagining. Any help is greatly appreciated.
Thank you! :wink: