CranberryDreams
New member
- Joined
- Jun 10, 2018
- Messages
- 1
- Reason
- Learn about ALS
- Country
- Aus
- State
- Victoria
- City
- Melb
Hi,
I was just wondering if anyone here had experienced similar symptoms to what I have and have managed to receive a diagnosis for their condition.
Approximately 3 years ago, I started noticing tremor on my left hand. I had difficulty holding my phone still to take pictures. At the same time, I started feeling really lethargic and shortness of breath. I was working out regularly and would consider myself a reasonably fit individual prior to these symptoms. However, when these symptoms started, I was so tired that I had to stop working out, and my heart felt like it couldn't take any form of workload.
I then started noticing this cogwheel movement on my calves when I tried doing seated calf raises. I have since noticed that any form of weight bearing activity on my muscles would result in a jerky movement and an inability to smoothly control my motion.
My muscles now burn with even very basic activity like walking up a flight of stairs etc. And I have noticed that my muscles are now gradually becoming very soft and flaccid and sinewy.
I have had most every major test done in the past 3 years, from EMGs to MRI to blood tests etc.
What I know is that I'm really struggling to function normally as most basic activities these days would result in my muscles burning like they've been worked for ages, and my heart would be beating very rapidly Android extremely short of breath.
Can anybody with similar symptoms help? Thank you very much in advance for all your assistance.
I was just wondering if anyone here had experienced similar symptoms to what I have and have managed to receive a diagnosis for their condition.
Approximately 3 years ago, I started noticing tremor on my left hand. I had difficulty holding my phone still to take pictures. At the same time, I started feeling really lethargic and shortness of breath. I was working out regularly and would consider myself a reasonably fit individual prior to these symptoms. However, when these symptoms started, I was so tired that I had to stop working out, and my heart felt like it couldn't take any form of workload.
I then started noticing this cogwheel movement on my calves when I tried doing seated calf raises. I have since noticed that any form of weight bearing activity on my muscles would result in a jerky movement and an inability to smoothly control my motion.
My muscles now burn with even very basic activity like walking up a flight of stairs etc. And I have noticed that my muscles are now gradually becoming very soft and flaccid and sinewy.
I have had most every major test done in the past 3 years, from EMGs to MRI to blood tests etc.
What I know is that I'm really struggling to function normally as most basic activities these days would result in my muscles burning like they've been worked for ages, and my heart would be beating very rapidly Android extremely short of breath.
Can anybody with similar symptoms help? Thank you very much in advance for all your assistance.