jethro
Distinguished member
- Joined
- Nov 2, 2017
- Messages
- 457
- Reason
- PALS
- Diagnosis
- 09/2017
- Country
- HR
- State
- Croatia
- City
- ZAGREB
can not say when my als started. i had dizzines and stil have it and that's why i visited neurologist.
i felt something is wrong in spring 2015., something with balance. tripping, falling etc. did all tests by 06 /2016 and there were no signs at all. emng ok, all als tests ok, even i felt bad.
when i barely walk to make mri, 500m, i was affraid of ms. it was in 06/17. mri was good, never heard of als then.
in 09/17 emng was disaster, problems with legs and right hand. diagnose: als.
now i am in hospital, doc asked me when i got als, didnt know what to say, so he couldnt conclude anything.
i can walk 200 meters at once, and noone can predict when i will use wheelchair.
am i fast or slow according to medical prediction with lifespan 3-5 years? i know that many people are diagnosed in one year, and they pass away next year, but they might have it for years...
i felt something is wrong in spring 2015., something with balance. tripping, falling etc. did all tests by 06 /2016 and there were no signs at all. emng ok, all als tests ok, even i felt bad.
when i barely walk to make mri, 500m, i was affraid of ms. it was in 06/17. mri was good, never heard of als then.
in 09/17 emng was disaster, problems with legs and right hand. diagnose: als.
now i am in hospital, doc asked me when i got als, didnt know what to say, so he couldnt conclude anything.
i can walk 200 meters at once, and noone can predict when i will use wheelchair.
am i fast or slow according to medical prediction with lifespan 3-5 years? i know that many people are diagnosed in one year, and they pass away next year, but they might have it for years...