Jeongwoohan
New member
- Joined
- May 15, 2018
- Messages
- 4
- Reason
- Learn about ALS
- Country
- Kor
- State
- Seoul
- City
- Seoul
Good to see you everyone
First of all, please understand my lack of English skill because I live in Korea and I am a male and 29 years old.
ALS is very very rare disease and the ALS with the Bulbar onset is rarer so that I can’t find and receive the proper comments on me regarding initial Bulbar symptoms in the Korean community, for which I request the comment from the someone who really knows about it.
My first symptom was started at 2018-02-03. At that time, I firstly feel my tongue is kind of heavy?? and cannot move naturally when talking with someone. I have the problem with some word which includes “s”, “n”.
Early of march 2018, which is the 1 month later after feeling first symptoms, I feel my tongue feel kind of pain like there is electric spark along with the boundary of my tongue. And, I notice that I can do “s”, “n” that is the pronounce in which I cannot do in 1 month ago but I cannot do the different pronunciation of latter of “L” and “d”. Now, I can do "s", "n", "l", and "d". But I cannot do the different letter.
April 24, my EMG result on the right arm and leg is perfectly normal. But I don’t do EMG on my tongue.
Now, (3 and 14 days later after first symptoms) the other person cannot notice I have the speaking problem. And I am going to visit the university hospital in order to take the EMG on the tongue directly at end of May.
As far as I know, bulbar symptoms progress really rapidly compared to ALS starting with the weakness on the arm and leg. And, I think 4 months is not short period to show the clear clinical symptoms if I am really bulbar onset of ALS.
In summary,
Early of February, I feel the speech problem until now
Early of March, I feel the numbness on my tongue until now. (I cannot explain the exactly, burning feeling, electrical something along with the boundary of my tongue)
Now (after 3 month 14 days later), I am perfectly normal except the tongue problem. And, the other person cannot notice I have the speech problem yet.
I will wait for your advice. Thank you very much
First of all, please understand my lack of English skill because I live in Korea and I am a male and 29 years old.
ALS is very very rare disease and the ALS with the Bulbar onset is rarer so that I can’t find and receive the proper comments on me regarding initial Bulbar symptoms in the Korean community, for which I request the comment from the someone who really knows about it.
My first symptom was started at 2018-02-03. At that time, I firstly feel my tongue is kind of heavy?? and cannot move naturally when talking with someone. I have the problem with some word which includes “s”, “n”.
Early of march 2018, which is the 1 month later after feeling first symptoms, I feel my tongue feel kind of pain like there is electric spark along with the boundary of my tongue. And, I notice that I can do “s”, “n” that is the pronounce in which I cannot do in 1 month ago but I cannot do the different pronunciation of latter of “L” and “d”. Now, I can do "s", "n", "l", and "d". But I cannot do the different letter.
April 24, my EMG result on the right arm and leg is perfectly normal. But I don’t do EMG on my tongue.
Now, (3 and 14 days later after first symptoms) the other person cannot notice I have the speaking problem. And I am going to visit the university hospital in order to take the EMG on the tongue directly at end of May.
As far as I know, bulbar symptoms progress really rapidly compared to ALS starting with the weakness on the arm and leg. And, I think 4 months is not short period to show the clear clinical symptoms if I am really bulbar onset of ALS.
In summary,
Early of February, I feel the speech problem until now
Early of March, I feel the numbness on my tongue until now. (I cannot explain the exactly, burning feeling, electrical something along with the boundary of my tongue)
Now (after 3 month 14 days later), I am perfectly normal except the tongue problem. And, the other person cannot notice I have the speech problem yet.
I will wait for your advice. Thank you very much