View Single Post
Old 05-15-2018, 03:21 AM #2 (permalink)
lgelb's Avatar
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,686
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,686
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: Worried about Bulbar Onset symptoms

Hi Jasper,


As you say, you have had issues for several years, with normal EMGs. Those two facts essentially rule out all but the slowest-moving, upper motor neuron disease (which is very rare), and certainly do not point to ALS.

Add to that your pre-existing reflux, and the conclusion is that your most recent throat symptoms are probably GI-related. That in turn suggests a second opinion at a different hospital or clinic about your GERD and what medications should be used, and tests done. If you have not been tested for H. pylori, this would be a good time.

Also, since any GI symptoms, and certainly throat problems, get worse when you are tired and stressed, those are always things to work on. Diet can also help a lot; you may want to consult with a dietician wherever you get your GERD care. Since GERD can lead to erosive esophagitis, which is more serious, it is certainly worth a second opinion given your symptoms.

But you're in the wrong place here, and that's great news.

Best,
Laurie
lgelb is offline  
Thanks from
Jasper1983 (05-15-2018)