Tucker753
Member
- Joined
- Apr 15, 2018
- Messages
- 11
- Reason
- Learn about ALS
- Country
- US
- State
- TENNESSEE
- City
- Drummonds
Hi everyone my name is jake and I’m 28 years old. My symptoms started over 2 years ago with random twitching and mild breathing issues.
This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction.
I then saw a neuromuscular specialist in November 2016 which performed a emg which was normal. I see the specialist again next month I hope he does another emg.
I’m constantly feeling smothered and it worse at times. The past moth I’ve noticed a lot of my muscles cramp with the lightest exertion especially my upper thighs.
I go up a couple flights of stir and my upper thighs cramp and hurt. I’ve also slowly started to develop difficulty swallowing food gets stuck in my throat.
I’ll have times where my breathing gets so bad it makes me panic it’s so scary..
I can hardly do anything now without getting breathless. Anyone with respiratory onset present this way did you have similar symptoms?
This past year my breathing has declined a lot. I’ve had a full cardiac and pulmonary work up all normal except pft showing restriction.
I then saw a neuromuscular specialist in November 2016 which performed a emg which was normal. I see the specialist again next month I hope he does another emg.
I’m constantly feeling smothered and it worse at times. The past moth I’ve noticed a lot of my muscles cramp with the lightest exertion especially my upper thighs.
I go up a couple flights of stir and my upper thighs cramp and hurt. I’ve also slowly started to develop difficulty swallowing food gets stuck in my throat.
I’ll have times where my breathing gets so bad it makes me panic it’s so scary..
I can hardly do anything now without getting breathless. Anyone with respiratory onset present this way did you have similar symptoms?