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Old 03-27-2018, 04:37 AM #5 (permalink)
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Nikki J Nikki J is offline
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Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
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Nikki J Nikki J is offline
Extremely Helpful Member
Forum Moderator

Nikki J's Avatar
Join Date: 2012
City: Boston
State: MA
Country: US
Diagnosed: 04/2014
Interest: I have been diagnosed with ALS.
Posts: 6,980
Nikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond reputeNikki J has a reputation beyond repute
Default Re: What keeps you going?

I have struggled with this even though I am very lucky to be slowly progressing.

Last year I decided to look at the things I wanted to do but couldn’t. I then looked to see what things could still be done if I tried an alternate way. That of course still left things that were impossible.

I then asked myself what activities I missed the most. There were 2 things that stood out. So I looked at what I enjoyed about them the most and listed ways I could get some of those things in a different way

I am definitely a work in progress. I am trying not to fight so hard but to work with this. I am not giving up at all. It is finding other ways to get what I need.

Losing your bassoon will be terribly hard I know. I am so sorry.
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