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Old 03-26-2018, 09:31 PM #1 (permalink)
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Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,480
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KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 1,480
KarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond reputeKarenNWendyn has a reputation beyond repute
Default What keeps you going?

My progression seems to have sped up these last few weeks and is causing havoc with my left hand function and my soft palate function, possibly also my breathing. This is making it hard for me to continue playing my bassoon, which has been my passion and joy for the past 44 years. I can maybe squeeze a few more weeks out of it, but the end is in site. To say Iím depressed about this pending loss is a tremendous understatement.

Previous to this, I lost my ability to ride my bike, ski, and hike ó also strong interests.

I am generally an upbeat person and have never had significant issues with depression. This seems to be more about finding purpose in the face of ongoing loss rather than a depression issue, though itís beyond sad.

I realize I still have a lot going for me in many ways. There is much I can still do. I realize many PALS have more advanced disease and much more loss, but I see that in my future too.

So the question I ask (particularly to those of you who have had more loss) is what keeps you going?
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