Jric80
Member
- Joined
- Feb 19, 2018
- Messages
- 24
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- Voorheesville
Hi everyone,
I'm a new member. This forum has been very helpful for me in recent weeks, and I was hoping to get some insight on my symptoms. I apologize in advance for the long explanation:
My symptoms started in early November 2017 when I noticed my upper lip began to twitch. It also felt like the left side of my tongue was numb. Around this time, I also felt pain down my left glute, calf and foot. I went to my primary and she referred me to a neurologist.
Met with Neurologist in early December 2017. He administered strength and reflex tests which were normal. He thought the leg pain was related to sciatica. He ordered a brain MRI to rule out any issues like tumor, etc. causing the numbness and twitch in my lip.
Prior to my Brain MRI in December, I woke up one morning with fullness in my left ear, dizzyness and vertigo. I couldn't walk without feeling like I was going to fall over. I immediately went to a ENT who found partial hearing loss in my left ear, and prescribed steroids. The vertigo subsided a few days later, but my hearing didn't fully recover 100%, following a second audiology test. At this time, I was able to make it to the MRI, which came back normal. No signs of tumor, MS, etc.
Since mid-December, right at the time I had hearing and vertigo issues, random body-wide muscle twitching started - arms, legs, glutes, stomach. I can even remember the exact night the twitching started - December 13th.
Since then, random muscle twitching has continued, up to and including today, with the most occurring in both my calves and feet at rest. I went back to the Neurologist in mid-January, and he did an EMG of both calves and quads, He advised it was normal. He thought my twitching is "probably benign" and he couldn't offer me a reason why I've experienced all of these symptoms. He isn't a neuromuscular specialist, so I'm concerned it was not thorough enough. I know this is my anxiety most likely.
Also, besides the continued twitching, I currently have the pain in my left glute, calf and foot. I don't feel like my muscles are week, just pain in my left leg, Including my heels. My left hand feels sore at times as well, but no issues with my grip.
My question is does ALS present itself like this? Is the pain related to possible weakness in my leg? I've tried to read so many helpful posts on this wonderful website to avoid asking questions that have been answered already. If anyone could offer opinions I would greatly appreciate it. I'm trying to get into a neuromuscular specialist here soon for a second opinion. Hoping the muscle twitching and pain stop soon.
Thank you to anyone who can offer thoughts or opinions. I will be donating to this website today as a new member who greatly appreciates everyone here trying to help others!
I'm a new member. This forum has been very helpful for me in recent weeks, and I was hoping to get some insight on my symptoms. I apologize in advance for the long explanation:
My symptoms started in early November 2017 when I noticed my upper lip began to twitch. It also felt like the left side of my tongue was numb. Around this time, I also felt pain down my left glute, calf and foot. I went to my primary and she referred me to a neurologist.
Met with Neurologist in early December 2017. He administered strength and reflex tests which were normal. He thought the leg pain was related to sciatica. He ordered a brain MRI to rule out any issues like tumor, etc. causing the numbness and twitch in my lip.
Prior to my Brain MRI in December, I woke up one morning with fullness in my left ear, dizzyness and vertigo. I couldn't walk without feeling like I was going to fall over. I immediately went to a ENT who found partial hearing loss in my left ear, and prescribed steroids. The vertigo subsided a few days later, but my hearing didn't fully recover 100%, following a second audiology test. At this time, I was able to make it to the MRI, which came back normal. No signs of tumor, MS, etc.
Since mid-December, right at the time I had hearing and vertigo issues, random body-wide muscle twitching started - arms, legs, glutes, stomach. I can even remember the exact night the twitching started - December 13th.
Since then, random muscle twitching has continued, up to and including today, with the most occurring in both my calves and feet at rest. I went back to the Neurologist in mid-January, and he did an EMG of both calves and quads, He advised it was normal. He thought my twitching is "probably benign" and he couldn't offer me a reason why I've experienced all of these symptoms. He isn't a neuromuscular specialist, so I'm concerned it was not thorough enough. I know this is my anxiety most likely.
Also, besides the continued twitching, I currently have the pain in my left glute, calf and foot. I don't feel like my muscles are week, just pain in my left leg, Including my heels. My left hand feels sore at times as well, but no issues with my grip.
My question is does ALS present itself like this? Is the pain related to possible weakness in my leg? I've tried to read so many helpful posts on this wonderful website to avoid asking questions that have been answered already. If anyone could offer opinions I would greatly appreciate it. I'm trying to get into a neuromuscular specialist here soon for a second opinion. Hoping the muscle twitching and pain stop soon.
Thank you to anyone who can offer thoughts or opinions. I will be donating to this website today as a new member who greatly appreciates everyone here trying to help others!