Dignify
New member
- Joined
- Sep 19, 2017
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 09/2017
- Country
- US
- State
- OH
- City
- Marysville
So I have a an appt. coming up on the 1st of March and I haven't gotten a true diagnoses yet. The team at OSU neurology believe its ALS, I am not convinced however because my symptoms are really atypical. My first symptoms were fasciculations 8 yrs ago in my calfs, constant, not painful with just achiness. About 3 yrs ago they spread to my left shoulder and from there down my arm, across my back and chest, then to my other arm, these have all been constant and never stopped. Over the last 2 yrs I have weakness and atrophy on the upper left side all the way down to my fingers. Emg was abnormal with some chronic denervation and reinervation. I have had a mri of the brain/neck, all kinds of dna/bloodwork, which were all negative or normal. Does anyone have any idea of what types of questions I need to be asking at this point? At my last visit, the last thing my neurologist said to me was "what else could it be". So I would like to be a little more prepared for that response this time around.
Thanks for your time.
Thanks for your time.