affected
Guru status reached
- Joined
- Apr 26, 2013
- Messages
- 16,096
- Reason
- Lost a loved one
- Diagnosis
- 05/2013
- Country
- OZ
- State
- AU
- City
- lala land
But ALS is not a muscle disease, this is where you are convincing yourself and ignoring us who know the disease.
It is a disease of the brain - the muscles are not working harder because there is less of them in ALS - the brain is no longer sending a signal to the muscles. I can tell you that this is not what you are describing.
Please do post once a neurologist has examined you and run tests and let us know the results. I'm really hoping they pin something down for you quickly and can get your moving on a strategy to treat whatever is going on. I'm not saying nothing is going on, just saying this is not how ALS works, regardless of how you think it is fitting into what you think about ALS.
It is a disease of the brain - the muscles are not working harder because there is less of them in ALS - the brain is no longer sending a signal to the muscles. I can tell you that this is not what you are describing.
Please do post once a neurologist has examined you and run tests and let us know the results. I'm really hoping they pin something down for you quickly and can get your moving on a strategy to treat whatever is going on. I'm not saying nothing is going on, just saying this is not how ALS works, regardless of how you think it is fitting into what you think about ALS.