chulita423
New member
- Joined
- Mar 13, 2018
- Messages
- 3
- Reason
- Lost a loved one
- Country
- US
- State
- MD
- City
- Silver Spring
Hi Everyone,
I am new to this group. My father passed away from ALS on September 26, 2017. He was Dx on 3/17. When we were given the Dx, the doctor asked about his family history illnesses. My great grandfather died pretty young and was told it was Alzheimer's or something related to that. They lived in a third world country and at the time, they just thought he had gone crazy. Anyway, he died pretty young of a neurological disease. My grandfather lived to about 90 but suffered with Alzheimer's for most of his life. My dad's older sister was dx with Parkinson's many years ago but she's still alive thankfully. The neurologist actually said that my dad has fALS because these 3 different neurological diseases are related. He recommended that my sister and I get genetic testing to find out. Georgetown University ALS clinic in DC is who treated my dad. Should I get the testing done? I have had symptoms for a while now of numbness (over a year) and the pass few months I have had weakness in my left side. It started in my hand but now I'm noticing it in my foot (mainly heel) a little as well. I recently started noticing atrophy in my left hand/arm too. I have fallen a few times but I chucked it up to me just being clumsy but now that I have noticed the atrophy, I am actually getting worried. Does anyone have family history related to mine? Should just keep on living blissfully ignorant until something worse happens? My mom wants me to get tested but in all honestly, I am scared of the results. Is there something else that could be causing this? Are these neurological diseases really related? Any information will be greatly appreciated. Thank you in advance.
I am new to this group. My father passed away from ALS on September 26, 2017. He was Dx on 3/17. When we were given the Dx, the doctor asked about his family history illnesses. My great grandfather died pretty young and was told it was Alzheimer's or something related to that. They lived in a third world country and at the time, they just thought he had gone crazy. Anyway, he died pretty young of a neurological disease. My grandfather lived to about 90 but suffered with Alzheimer's for most of his life. My dad's older sister was dx with Parkinson's many years ago but she's still alive thankfully. The neurologist actually said that my dad has fALS because these 3 different neurological diseases are related. He recommended that my sister and I get genetic testing to find out. Georgetown University ALS clinic in DC is who treated my dad. Should I get the testing done? I have had symptoms for a while now of numbness (over a year) and the pass few months I have had weakness in my left side. It started in my hand but now I'm noticing it in my foot (mainly heel) a little as well. I recently started noticing atrophy in my left hand/arm too. I have fallen a few times but I chucked it up to me just being clumsy but now that I have noticed the atrophy, I am actually getting worried. Does anyone have family history related to mine? Should just keep on living blissfully ignorant until something worse happens? My mom wants me to get tested but in all honestly, I am scared of the results. Is there something else that could be causing this? Are these neurological diseases really related? Any information will be greatly appreciated. Thank you in advance.