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Old 03-12-2018, 08:09 PM #10 (permalink)
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Join Date: 2013
City: lala land
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Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
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Join Date: 2013
City: lala land
State: home
Country: OZ
Diagnosed: 05/2013
Interest: I lost a loved one to ALS/MND.
Posts: 10,966
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Default Re: Lastest aggravation

Definitely there is a skin issue with ALS and we still don't know why.

For my Chris - the dry itchy patches of skin started a year before his bulbar issues and you had to know what amazing soft skin he had (really you can make jokes but it's true)

I too don't know how I would be if I couldn't scratch itches, I was always very happy to do this for Chris.

The exfoliators are great and important as is moisturising but carefully so you don't get the other skin issue that is so common with ALS which is fungal infections. So you have to keep the skin moist but avoid creases remaining damp
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