Sending big hugs.
I so know how you feel, I wake at night with that horrible feeling I am trying to keep calm. The doctor prescribed lorazepam which helps, we found out the hard way that I can't be off the bipap for more than a few minutes. I pass out then stop breathing. The hospital gave me a spare machine I'm now also using eyegaze which is fantastic.
I don't know what my fvc is and don't want to really, I am just concentrating on hanging on and looking forward to seeing my next grandchild due in july.
glad your new medication is helping.
wendy xx